Sweet Son of a Pickle! Today’s appointment did not go the way My Man and I had thought it would. The stupid little tumor is back!
However, there is some good news. The tumor is in a different place then the last one. In fact it is most likely the cause of my rib pain. It is smaller than the last one, so it doesn’t seem to be growing as fast. Dr. Read has suggested and we have agreed with him, to try a newish drug called Pazopanib that I will take four times a day. During the clinical trails it was found that it worked best on my type of sarcoma :). It is a very $$$ drug but I just found out that my insurance company ok’d it and I should have it sometime next week.
The drug will hopefully stop the tumor from growing. That is the first goal and if that is all that happens then I am a winner and I will take it for the rest of my life. Second goal is for it to start shrinking them so maybe this pain in my ribs would go away (Dr. Read gave me some pain meds to help with the pain). Right now I am focused on the first goal. I am not sure what all the side effects are but I did read that weight loss was one. Right. Knowing my luck I will gain weight just like I did with chemo!
I will go back in to see Dr. Read after I have been on the drug for at least two weeks. They will take blood and make sure my white blood cell count is good. After I have been on the drug for a month they run another CT scan and hopefully there will be no growth on the tumor(s). I am to keep up my healthy eating and exercise.
It could end up that I have a chronic disease (like diabetes) called cancer that I manage by taking a pill four times a day. I would be ok with that.