So I am channeling my inner sloth…moving slow. When I woke up it took me about an hour to get the energy to get out of the bed and go to the bathroom. Then I had to get back in the bed to rest. I will not be surprised when if takes me a few hours to write this blog post.

Keeping me company

About four hours later…

I am not kidding, it is really four (maybe five) hours later. I have been keeping in my sloth groove. I did eat a little lunch around 2pm and took a shower! Hair update: Still got it!

Haven’t used it yet!

I also did like 20 minutes of work related stuff that all most knocked me out. I am not kidding. Talking on the phone is hard for me. It tires me out for a few reasons:

1. I have to move my mouth.

2. Moving my mouth and then speaking tends to make cough.

3. Coughing hurts. It hurts my chest. This make me tired

4. I have to think. Yes, when speaking I really try to pay attention (it is only polite) and that makes me tired. I am sure some would say that this has nothing to do with the chemo the way I keep a conversation going.

Today there doesn’t seem to be a “flow” in the blog post. You will just have to deal with it. Once again, the “thinking” issue tires me out. Last night is was so nice falling to sleep to Panny’s gentle motor of her purr and the random loud sigh/sneeze/ burp(I hope)/groan of Timber.

Panny

However, right when I was about to hit dreamland I heard crying. It was The Boy. I yelled out to him to see what was wrong but as My Man always says, it is not the BEST way to communicate. Luckily My Man heard him and came upstairs to find out the problem was. Now, don’t worry friends…the crying had NOTHING to do with mom having CANCER! Nope! He had lost his “Man of Steel” and other “stuff” he had designed on Minecraft  (for those who do not have a 6-12 year old boy) because his battery ran out. Juicy tears this caused! Wailing! Life is so not fair!! How will he ever get enough iron to make it all again! The Horror of life!

Questions:

1. Do they not have save button on that game?

2. How many time must I tell him to charge the tablet!?!

I must say, I am happy with the way he is dealing with all this (the cancer, not the game). He is a super strong boy. I know when I have to shave my head he will be upset. I think if My Man shaves his head, The Boy is going to be embarrassed. Poor thing. I tell him that My Man’s hair will grow back in a week!

There are a lost of you out there who have been so kind to us over the past few weeks. Here are a few shout outs for today:

Pat- got the chocolates today!

Jason Grady- Thanks for the food!

Dona- Thank you for the food! (sorry I missed you)

Kysha-Thanks for the sweet card and tea! ( I am using the lip stuff today).

Robin & Family Thanks for Ginger treats, the Sate and Tiger shirts for The Boy and The Wine for My Man

Jennifer Sherwood-Using my cups today!

Aimee- Taking my Ginger and wearing my pink socks today!

Rebecca- Your late night text messages keep me laughing

Calanit-Thank you for organizing the food drop off!

Here are  few pictures I took from the hospital. I am working on the Mac down in my office right now. I know! I took a FIELD TRIP!!

My Bling

Washing my hair in the hospital

Hospital Christmas Pole

Hanging out

Ready for Chemo

Cycle 1

So, I have this Port. Actually, I have two cause one is just not enough! For those who do not know what it is, this is how they give you them chemo, take blood, give other meds. If not, they would have to stick you each and every time. So even though I am out for a bit, I still have it in there. In fact I have to wear a fancy bracelet (or Eric the RN will come kick my ass. He will. He said so). that says I have it in.

Much better

This way if I am in a car wreak and they need to give me blood they don’t have to stick me. Happy Thoughts! I know I bruise easily but take a look! Ugh. The big bandage is still on because I am afraid to look at it!

And they say the Port is better (It really is but DAM!)

This post has worn me out! Later….

I am home! Woot! Woot! I can’t begin to tell you how happy I am and nice it is to be home. I LOVE my bed. I LOVE my bathroom. I LOVE my shower! Yes, I took a shower. It felt so good. They took my needle out of my port this morning so taking a however was ago. I am happy to report that I have my hair.

Last night was not the best. I was done with all the chemo and premeds but I had the BIGGEST headache. I asked for Tylenol or Advil but all I was OK for was Vicodin. Vicodin is great for when you are in pain but not for a headache. I was in and out of sleep all night long. And I had some crazy thoughts. No zombies but crazy thoughts. I couldn’t get my mind to stop running. Luckily I was able to get something for my headache when I got home this morning.

I was able to take a nap today and ate a little pasta (thanks Devra and Jeff). Eating has been and issue. I ate about a cup and a half of it but it took about 45min for me to do it. I know I am hungry, I know I need to eat, I want to eat but it is so tiring to eat.

Oh!  I threw up! About 30min before we left the hospital!  Sorry but I said I would tell all…. Anyway, I  was so bummed. I had been doing so well. I was taking my regular pills and I knew when they went down, all was not right. My Man was able to get the trash can to me in time. Theo (my RN) was like “What?!? Your about the leave!” Thankfully it did not slow us down.

Time passing…..

I am back. I bet you didn’t even know I was gone! Spent some time downstairs. Had some more pasta and caeser salad. I also had some ginger tea. I can’t remember who gave it to me but thank you! Then 6pm came around and the one thing that has been freaking me out was about to happen. My Man had to give me my shot! I was nervous….I think he was nervous. Panny and Timber, they weren’t nervous. Simon was a sleep. My Man went and washed his hands really good, cleaned my tummy and boom! Gave me the shot. There was a bit of blood that freaked him out a bit “Why did that happen?”, but overall it wasn’t too bad.

Still a bit nauseous but the meds are helping. Hopefully I will feel up to talking a bit tomorrow, got some work I need to do. Thank you all for your thoughts and prayers!

Good Night!

I am feeling the sluggish, tiredness I was warned about. I have been feeling a bit sick to my stomach throughout the day. I will also admit typing this is a bit hard. I keep repeating my self and my spelling is worse the normal. No Zombies though…me just a bit slow…..

All my chemo is done, I am now taking mesna and fluids to flush my body out and protect my bladder and kidneys’. I have to do this till about 2am, so it looks like I will be here one more night. I am looking forward to my home, my bed, my Simon and Panny, my big puppy and most of all being with my boys.

Today was a low key day, which was good because I wasn’t feeling all that great. My mom and dad brought The Boy down around lunch time to visit. He is doing good. Got all cleaned up and his shaggy hair smelled very fresh. He has been sleeping in our bed while we are gone. Thimber is hanging out there with him an night, so I think they both feeling better.

Mom and Dad did some cooking and brought down some majic broth for me to try. It was pretty good. I ate half of it for lunch. I took a few naps through the day. My Man went out and me some humus, grape leaves, and greek salad. I ate some of that, while the then went out to get some dinner. I then took quick cat naps while answering texts from him. He had a nice dinner. And some beers. And someone dropped off food at the house. And I should call my mom. And you did I need anything?  No, babe. Just you.

I will be starting my last round (6th) tonight. Then I will get more Thiamine. There is a chance I will get to go home late tomorrow night. It would be great to sleep in my bed and not have to take the “hospital christmas tree pole” with me every time I pee, which has been a lot. But that is a good thing or so I am told. The nurse exchange just happened. Tiffany is on tonight. All my nurses had been great. I hope it is this way next time around.

I am still coughing but the doctor said today it is way to soon to see if the chemo is working. I needs to be in there for a bit to start KILLING all the crappy cancer. 

Tomorrow The Boy and Timber are going over to friends for a play date/sleep over. I know they are both excited.The Boy may be going to White Water if the weather is nice. My Mom and Dad are headed to Ohio where he will take part in the Senior Olympics in three biking events.  And I will hopefully be sleeping peacefully in my bed. Good Night!

Day Four started out a little slower than the days before. I am sleeping more and longer. My Man woke me around 9:45am to tell me he was heading out to get cleaned up. I think I ordered breakfast and fell back to sleep. A nurse woke me up later to tell me to eat before my food got cold. I ate a little. Note to restaurants: Do not call than hash browns if they really home fries. There is a difference people!!! After I ate I fell back asleep. My Man woke me up when he came back.

I am feeling a bit worn down today. Lucky for me, my period has started. Really? I thought chemo stopped that shit. Ugh. So there is that making me feel like poo. I just finished my 5th round of chemo and I think it is starting to mess with me a bit. Like right now I am having issues tying this! Maybe it is time to o my zombie check and take a nap.

Yeah! I slept last night!! Woot! So I took the pill, actually it was given to me via IV. After my mom, dad and Th Boy left. My Man popped open a beer and put the DVD Ted in. What can I say about that movie….I did laugh…at how stupid it was. No, it was a good thing to watch. We had to stop it every so often when they cam in to take my vitals and the start my chemo.

Around 10:50pm they came in to give me my sleepy time medicine and I was out by 10:52pm. I heard the machine go off an hour later saying my chemo was done but don’t remember her coming in. I do remember the nurse change at 7:15am and then the next thing I knew it was 9:35am. My Man had already cleaned up his bed and left to go home. He left a note, he is so sweet.

I ate a bit of breakfast and got as cleaned up as much as a person hooked up to a pole that is looking like a hospital Christmas three can. My Man came back with a book of goodies!!! I got a super sweet card from my girl Kysha, my own Ride ID from Andy and Dee, a scarf from Tina, warm and fuzzy socks, Keeping Cancer Sexy book, lolli pops, a PsiBands from Aimee. Thank you! I also got a sweatshirt that says F.U. Cancer. it is very nice a super soft but I am not sure who sent it. Anyone? Anyone?

Rebecca, Devra and Calanit came to visit. They brought me TP!!!! So happy. It is the little soft things that matter. I also got a book and BridesMaids DVD to pass the time. We went for a walk around the floor and they have decided to come up with a group and go from room to room singing to cancer patients. I ordered a shower shampoo cap since I can’t take a bath/shower. My hair needed help. If you are of FB or Instagram you have seen the picture.

Chemo #4 is done. I am still coughing but it isn’t as bad as before. I am a kinda tired today but no Zombies.