It is Time to ROCK!

Kiss Kitty!!!

Kiss Kitty!!!

How Cool Is She??!! She is SUPER COOL!!!! Big shout out to Tracy K. When The Boy and I opened the package and saw what it was, we both started yelling. So cool. Plus anything Hello Kitty rocks.

This morning is starting out better than last. I was able to take a nap yesterday and take some NyQuil last night, so I got some rest. Still woke up with an aching jaw and sore throat but the cough, knock on wood, has not been too bad. I don’t know if I have mentioned this before, but the coughing has nothing to do with a cold or being sick. The doctor thinks it has to with the tumor pushing up against my trachea. So if the cough is bad, the tumor is pushing against it. If is isn’t bad, as in I am not coughing as much, it isn’t pushing up against it. And one reason for it not pushing up against it is that is getting smaller. And that folks is what we want to happen! Keep those fingers and toes crossed!

Going to play it smart today and not go crazy. I do have two places I would like to go to today both very quick visits. The rest of the day will be me at home working, resting and doing some laundry. I need more PJ pants!

That is all for now. Now Readers, being like Hello Kitty and go out and ROCK!!!

Have I told you how cool my friends are???

Have I told you how cool my friends are??? I know I have but it goes without saying, I got the best ones. Yesterday we had a friends over to hang out and go swimming. True to course, the weather here in the ALT was kinda shitty so just the kids went swimming. But hey, at least the pool is getting used!

So, I will admit it, I overdid it yesterday. By the time everyone came over around 2pm, I had driven myself to the Farmer’s Market, whipped out the leaf blower and work on the patio/pool area and mopped part of our wood floors. (some cat, (Simon) made a mess with his dirty paws). When everyone came I made a corn and tomato salad with basil, olive oil and lemon juice.

When I took my temperature it was 99. Well my 4 nurses sprang into action! Nurse Rebecca, Amy, Devra and Calanit moved me into the family room, got me water, a wet wash cloth, insisted I put my feet up and not move. This went on all day. I admit, I wasn’t feeling good and it was nice to have friends call me out on it and take care of me. Rebecca even gave me an pedicure. I have not

Rebecca hard at work!

Rebecca hard at work!

So pretty!

So pretty!

How nice is that? I have pretty pink toes! The Boy had a great time with his friends and My Man got some much-needed relaxation time with his friends. The Boy went home with his BF Corey and this morning went to church and the to White Water Atlanta. Afterwards they are heading to Amy’s community pool and will have dinner with them. This is giving me some much-needed rest time since at 4am me and My Man were in the ER. It was a false alarm. I haven’t been sleeping well or in some cases at all, I did too much earlier in the day and a temperature came on. I got as high as 100.5 but what we found out is that our thermometer is about a degree off! While at the ER I never got past 99. We got home around 7:15am and both went back to bed. I am going to be calling the doctor on Monday and will ask for something to help me sleep. This can’t go on.

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When I woke at noon my body was killing me. I felt like I had been hot by a truck! My back hurt so bad and my phantom pains where f-ing unreal. Hurt so bad. The only good thing about this is that My Man does not have to give me my shots anymore! Woot!

Whatcha Reading

My friends Aimee sent me this book and I just started reading it. Here I thought I had a rare cancer (sarcoma makes up less that 1% of all cancers). The author’s has a cancer that only .01% of the populations gets. WOW.

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I am on chapter 3 and am enjoying it so far. It would be a great book for caregivers to read too.

Shout Outs!

Jennifer S. Thanks for dropping off food for us! I look forward to my soup and pizza. I already started eating the strawberries. Sorry I didn’t come to the door, I wasn’t in the best shape. Glad you got to meet Timber!

Gerri- The soup hit the spot this afternoon! Very Yummy!

All my ladies Yesterday was a lot of fun, even though I overdid it! You guys are the best!!

Moving like a sloth…

imagesSo I am channeling my inner sloth…moving slow. When I woke up it took me about an hour to get the energy to get out of the bed and go to the bathroom. Then I had to get back in the bed to rest. I will not be surprised when if takes me a few hours to write this blog post.

Keeping me company

Keeping me company

About four hours later…

I am not kidding, it is really four (maybe five) hours later. I have been keeping in my sloth groove. I did eat a little lunch around 2pm and took a shower! Hair update: Still got it!

Haven't used it yet!

Haven’t used it yet!

I also did like 20 minutes of work related stuff that all most knocked me out. I am not kidding. Talking on the phone is hard for me. It tires me out for a few reasons:

1. I have to move my mouth.

2. Moving my mouth and then speaking tends to make cough.

3. Coughing hurts. It hurts my chest. This make me tired

4. I have to think. Yes, when speaking I really try to pay attention (it is only polite) and that makes me tired. I am sure some would say that this has nothing to do with the chemo the way I keep a conversation going.

Today there doesn’t seem to be a “flow” in the blog post. You will just have to deal with it. Once again, the “thinking” issue tires me out. Last night is was so nice falling to sleep to Panny’s gentle motor of her purr and the random loud sigh/sneeze/ burp(I hope)/groan of Timber.

Panny

Panny

However, right when I was about to hit dreamland I heard crying. It was The Boy. I yelled out to him to see what was wrong but as My Man always says, it is not the BEST way to communicate. Luckily My Man heard him and came upstairs to find out the problem was. Now, don’t worry friends…the crying had NOTHING to do with mom having CANCER! Nope! He had lost his “Man of Steel” and other “stuff” he had designed on Minecraft  (for those who do not have a 6-12 year old boy) because his battery ran out. Juicy tears this caused! Wailing! Life is so not fair!! How will he ever get enough iron to make it all again! The Horror of life!

Questions:

1. Do they not have save button on that game?

2. How many time must I tell him to charge the tablet!?!

I must say, I am happy with the way he is dealing with all this (the cancer, not the game). He is a super strong boy. I know when I have to shave my head he will be upset. I think if My Man shaves his head, The Boy is going to be embarrassed. Poor thing. I tell him that My Man’s hair will grow back in a week!

There are a lost of you out there who have been so kind to us over the past few weeks. Here are a few shout outs for today:

Pat- got the chocolates today!

Jason Grady- Thanks for the food!

Dona- Thank you for the food! (sorry I missed you)

Kysha-Thanks for the sweet card and tea! ( I am using the lip stuff today).

Robin & Family Thanks for Ginger treats, the Sate and Tiger shirts for The Boy and The Wine for My Man

Jennifer Sherwood-Using my cups today!

Aimee- Taking my Ginger and wearing my pink socks today!

Rebecca- Your late night text messages keep me laughing

Calanit-Thank you for organizing the food drop off!

Here are  few pictures I took from the hospital. I am working on the Mac down in my office right now. I know! I took a FIELD TRIP!!

My Bling

My Bling

Washing my hair in the hospital

Washing my hair in the hospital

Hospital Christmas Pole

Hospital Christmas Pole

Hanging out

Hanging out

Ready for Chemo

Ready for Chemo

Cycle 1

Cycle 1

So, I have this Port. Actually, I have two cause one is just not enough! For those who do not know what it is, this is how they give you them chemo, take blood, give other meds. If not, they would have to stick you each and every time. So even though I am out for a bit, I still have it in there. In fact I have to wear a fancy bracelet (or Eric the RN will come kick my ass. He will. He said so). that says I have it in.

Much better

Much better

This way if I am in a car wreak and they need to give me blood they don’t have to stick me. Happy Thoughts! I know I bruise easily but take a look! Ugh. The big bandage is still on because I am afraid to look at it!

And they say the Port is better (It really is but DAM!)

And they say the Port is better (It really is but DAM!)

This post has worn me out! Later….

Home!

I am home! Woot! Woot! I can’t begin to tell you how happy I am and nice it is to be home. I LOVE my bed. I LOVE my bathroom. I LOVE my shower! Yes, I took a shower. It felt so good. They took my needle out of my port this morning so taking a however was ago. I am happy to report that I have my hair.

Last night was not the best. I was done with all the chemo and premeds but I had the BIGGEST headache. I asked for Tylenol or Advil but all I was OK for was Vicodin. Vicodin is great for when you are in pain but not for a headache. I was in and out of sleep all night long. And I had some crazy thoughts. No zombies but crazy thoughts. I couldn’t get my mind to stop running. Luckily I was able to get something for my headache when I got home this morning.

I was able to take a nap today and ate a little pasta (thanks Devra and Jeff). Eating has been and issue. I ate about a cup and a half of it but it took about 45min for me to do it. I know I am hungry, I know I need to eat, I want to eat but it is so tiring to eat.

Oh!  I threw up! About 30min before we left the hospital!  Sorry but I said I would tell all…. Anyway, I  was so bummed. I had been doing so well. I was taking my regular pills and I knew when they went down, all was not right. My Man was able to get the trash can to me in time. Theo (my RN) was like “What?!? Your about the leave!” Thankfully it did not slow us down.

Time passing…..

I am back. I bet you didn’t even know I was gone! Spent some time downstairs. Had some more pasta and caeser salad. I also had some ginger tea. I can’t remember who gave it to me but thank you! Then 6pm came around and the one thing that has been freaking me out was about to happen. My Man had to give me my shot! I was nervous….I think he was nervous. Panny and Timber, they weren’t nervous. Simon was a sleep. My Man went and washed his hands really good, cleaned my tummy and boom! Gave me the shot. There was a bit of blood that freaked him out a bit “Why did that happen?”, but overall it wasn’t too bad.

Still a bit nauseous but the meds are helping. Hopefully I will feel up to talking a bit tomorrow, got some work I need to do. Thank you all for your thoughts and prayers!

Good Night!

Spoke to soon…

I am feeling the sluggish, tiredness I was warned about. I have been feeling a bit sick to my stomach throughout the day. I will also admit typing this is a bit hard. I keep repeating my self and my spelling is worse the normal. No Zombies though…me just a bit slow…..

All my chemo is done, I am now taking mesna and fluids to flush my body out and protect my bladder and kidneys’. I have to do this till about 2am, so it looks like I will be here one more night. I am looking forward to my home, my bed, my Simon and Panny, my big puppy and most of all being with my boys.

This could be my last night!!!!

Today was a low key day, which was good because I wasn’t feeling all that great. My mom and dad brought The Boy down around lunch time to visit. He is doing good. Got all cleaned up and his shaggy hair smelled very fresh. He has been sleeping in our bed while we are gone. Thimber is hanging out there with him an night, so I think they both feeling better.

Mom and Dad did some cooking and brought down some majic broth for me to try. It was pretty good. I ate half of it for lunch. I took a few naps through the day. My Man went out and me some humus, grape leaves, and greek salad. I ate some of that, while the then went out to get some dinner. I then took quick cat naps while answering texts from him. He had a nice dinner. And some beers. And someone dropped off food at the house. And I should call my mom. And you did I need anything?  No, babe. Just you.

I will be starting my last round (6th) tonight. Then I will get more Thiamine. There is a chance I will get to go home late tomorrow night. It would be great to sleep in my bed and not have to take the “hospital christmas tree pole” with me every time I pee, which has been a lot. But that is a good thing or so I am told. The nurse exchange just happened. Tiffany is on tonight. All my nurses had been great. I hope it is this way next time around.

I am still coughing but the doctor said today it is way to soon to see if the chemo is working. I needs to be in there for a bit to start KILLING all the crappy cancer. 

Tomorrow The Boy and Timber are going over to friends for a play date/sleep over. I know they are both excited.The Boy may be going to White Water if the weather is nice. My Mom and Dad are headed to Ohio where he will take part in the Senior Olympics in three biking events.  And I will hopefully be sleeping peacefully in my bed. Good Night!

Feeling a bit run down…

Day Four started out a little slower than the days before. I am sleeping more and longer. My Man woke me around 9:45am to tell me he was heading out to get cleaned up. I think I ordered breakfast and fell back to sleep. A nurse woke me up later to tell me to eat before my food got cold. I ate a little. Note to restaurants: Do not call than hash browns if they really home fries. There is a difference people!!! After I ate I fell back asleep. My Man woke me up when he came back.

I am feeling a bit worn down today. Lucky for me, my period has started. Really? I thought chemo stopped that shit. Ugh. So there is that making me feel like poo. I just finished my 5th round of chemo and I think it is starting to mess with me a bit. Like right now I am having issues tying this! Maybe it is time to o my zombie check and take a nap.